Sunday, 20 August, 2017

Charlie Gard hospital slams 'world where only parents decide for children'

Charlie Gard via Two international experts to attend meeting in Charlie Gard case
Rosalie Gross | 20 July, 2017, 02:22

A USA doctor flew into the U.K. Monday alongside other medical experts to examine Charlie Gard and determine Gard's chances of improvement with treatment.

Congress passed an amendment granting "permanent resident status to Charlie Gard and family so Charlie can get the medical treatment he needs", Nebraska Republican Rep. Jeff Fortenberry of Nebraska tweeted Tuesday.

Gard and his family have been at the center of an worldwide debate over whether governments can make life and death decisions for individuals.

Whitehall sources said the visa offer would make no difference as he is not allowed to travel to the U.S. under an existing court direction.

"This amendment would speed up the process, cut through the bureaucratic red tape, and ease the path for Charlie to be able to receive medical treatment in the US that his parents and medical specialists believe is worth pursuing", Herrera Beutler continued.

The mother of terminally ill baby Charlie Gard is preparing for a meeting which could decide the little boy's future. They also were denied permission to take the baby to the United States for evaluation and possible treatment.

"You know, a lot of women at this point would be across the street scheduling an abortion", she says the doctor told her.

Mitochondrial DNA depletion syndrome refers to a group of disorders that cause affected tissues to suffer from a significant drop in mitochondrial DNA.

Doctors at London's Great Ormond Street Hospital said transferring the baby to a US hospital would prolong his suffering.

Yates told told Good Morning Britain last week, "I've heard from doctors that there's around a 10 percent chance of this working for Charlie so I think that's a good enough chance to take".

However, Dr. Michio Hirano, MD, a Harvard-trained neurologist, examined Charlie this week to provide his opinion about experimental treatment. We are at his bedside and feel satisfied he is not suffering or in any pain.

Dr Hirano, from the Columbia University Medical Center, is offering to try the experimental therapy.

But Dr Hirano, 55, believes his experimental theory could give Charlie "11% to 56% chance of clinically meaningful improvement".

Dr Hirano, who flew back to NY last night, failed to convince doctors that his experimental treatment could work.

"Not only that, but they said it would be futile and would prolong Charlie's suffering", the hospital's statement added.

The European Court of Human Rights decided that Charlie should be taken off life support, but his parents have continued to fight, gaining unbelievable coverage worldwide. The increased attention Charlie's battle has attracted in the US may have already been a factor in getting Charlie the help that he needs.

Tensions also arose between GOSH doctors and Gard's parents over the size of the baby's head - an increase in brain size (which hospital measurements dispute but Yates insists her own measurements support) could indicate brain development.

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