Thursday, 17 August, 2017

Court to decide Charlie Gard's fate next week

Eleven-month-old Charlie Gard suffers from a rare genetic condition and has brain damage Eleven-month-old Charlie Gard suffers from a rare genetic condition and has brain damage
Connie Andrews | 22 July, 2017, 00:24

Charlie Gard campaigners have been urged to show consideration to the parents of other children being treated at Great Ormond Street Hospital.

"Congressman Bradwenstrup and I have proposed legislation to grant lawful permanent status in the U.S.to Charlie Gard and his family, so they can at least pursue their best hope for Charlie", Rep. Franks told Fox News July 11.

A spokeswoman for Great Ormond Street acknowledged the hospital had received complaints from families but would not provide further details.

Charlie suffers from a rare genetic condition and has brain damage.

Earlier this month the judge condemned people who had abused and threatened Great Ormond Street medics on social media as a result of Charlie's case.

He said Great Ormond Street staff did a "remarkably good job".

Meetings were also held this week with Charlie's mother, doctors treating Charlie at Great Ormond Street Hospital and American specialist Dr. Michio Hirano, an American neurology expert from Columbia Medical Center in NY who has designed the experimental treatment.

After studying a new brain scan and examining Charlie, Dr Hirano has not changed his opinion, the court heard, which was that there is a ten per cent chance nucleoside treatment will have "meaningful success".

The news comes after a High Court judge said he would need to know whether there was "new material" that could affect his decision, expected to be made after full-day hearings early next week.

Meetings were also held this week with Charlie's mother, doctors treating Charlie at Great Ormond Street Hospital and American specialist Dr. Michio Hirano.

In the course of the hearing, British high court Justice Francis said their son can not be moved to the United States for treatment without a court order, squashing hope that a move to grant him residency in the USA would help him, according to The Independent.

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