Sunday, 17 December, 2017

UK Hospital Reconsiders Baby Charlie Gard's Death Verdict

Charlie Gard's mother Connie Yates appeared on Good Morning Britain ITVCharlie Gard's mother Connie Yates appeared on Good Morning Britain
Christy Curtis | 10 July, 2017, 00:33

They are looking for a chance for their son.

Chris Gard and Connie Yates with their son, Charlie Gard.

There's nothing to lose, he deserves this chance.

The couple, both in their 30s and from Bedfont, west London, want to take their son to a hospital in the U.S. for nucleoside treatment. We've been fighting for this medication since November. "We're now in July".

Ms Yates said her son was "not in pain or suffering" and she had been given hope by global attempts to come to Charlie's aid, including from the Pope and President Trump. "And we believe, in common with Charlie's parents, it is right to explore this evidence".

Mr Gard said they needed a specialist in Charlie's condition and therefore need to send him to America to "give him the chance he deserves".

Charlie's fight for life received high-profile support from U.S. President Donald Trump and Pope Francis, with U.S. lawmakers planning to introduce legislation next week that would grant lawful permanent resident status in the U.S.to the child so he can receive treatment. One of those doctors is a researcher and neurologist from Bambino Gesù Children's Hospital in Rome, which has previously offered to treat Charlie.

Great Ormond Street Hospital said on Friday it had applied to the High Court for a fresh hearing in light of claims of new evidence relating to potential treatment for his condition.

Connie Yates speaks about her son Charlie Gard on Good Morning Britain
ITVConnie Yates speaks about her son Charlie Gard on Good Morning Britain

GOSH describes experimental nucleoside therapies as "unjustified" but its decision comes after two global hospitals and their researchers contacted them "as late as the last 24 hours" to say they have "fresh evidence about their proposed experimental treatment".

Great Ormond Street Hospital said Friday that "two worldwide hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment".

Charlie's parents, from Bedfont, West London, are steeling themselves for a long hearing at the High Court on Monday.

"That very institution hired to care for Charlie is trying to strip him of his rights and his parents of their rights to even just take him to get a second opinion".

Great Ormond Street Hospital said it is "bound by the ruling of the High Court which expressly forbids us from transferring Charlie for nucleoside therapy anywhere".

A GoFundMe campaign for Charlie has raised more than £1.3 million, or roughly $1.7 million. The hospital also offered to ship the experimental drug to Great Ormond Street Hospital.

Doctors at the hospital in London, however, are determined to block the trip and ensure that Charlie's life support should be withdrawn. However, doctors at Great Ormond Street Hospital (GOSH), where he's being kept alive have been denying the parents the right to try and save their child and United Kingdom and European courts have backed them up.

But, after a worldwide media storm over the case, global experts presented Charlie's family with new evidence that gave the baby a much higher chance of survival than previously thought.

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